The Development of a Clinical Registry Digital Database on Invasive Fungal Infections in India: Advancing Epidemiological Understanding and Patient Care.

The Development of a Clinical Registry Digital Database on Invasive Fungal Infections in India: Advancing Epidemiological Understanding and Patient Care.

Publication date: Jan 05, 2024

A well-structured digital database is essential for any national priority project as it can provide real-time data analysis and facilitate quick decision making. In recent times, particularly after the COVID-19 pandemic, invasive fungal infections (IFIs) have emerged as a significant public health challenge in India, affecting vulnerable population, including immunocompromised individuals. The lack of comprehensive and well-structured data on IFIs has hindered efforts to understand their true burden and optimize patient care. To address this critical knowledge gap, the ICMR has undertaken a Pan-India pioneer initiative to develop a network of Advanced Mycology Diagnostic research centres in different geographical zones of the country (ICMR-MycoNet). Under the aegis of this project, a clinical registry on IFIs in the ICUs is initiated. This process paper presents a detailed account of the steps involved in the establishment of a web-based data entering and monitoring platform to capture data electronically, ensuring robust and secure data collection and management. This system not only allows participating ICMR-MycoNet centres to enter patient information directly into the database using standardized Case Report Form (CRF) but also includes data validation checks to ensure the accuracy and completeness of entered data. It is complemented by a real-time, web-based, and adaptable data visualization platform. This registry aims to provide crucial epidemiological insights, promote evidence-based hospital infection control programs, and ultimately improve patient outcomes in the face of this formidable healthcare challenge.

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Concepts Keywords
Basel case report form
Formidable clinical registry
Fungi diagnosis
Mycology epidemiology
Pandemic invasive fungal infections
mycology
public health

Semantics

Type Source Name
disease MESH Invasive Fungal Infections
disease VO time
disease MESH COVID-19 pandemic
disease VO population
disease VO LACK
disease VO Gap
disease IDO country
disease IDO process
disease VO report
drug DRUGBANK Corticorelin
disease MESH hospital infection
drug DRUGBANK Coenzyme M
disease MESH fungal diseases
disease MESH Pulmonary Aspergillosis
disease MESH Mucormycosis
disease MESH infections
disease MESH AIDS
disease MESH cancer
disease VO organ
disease MESH critically ill
drug DRUGBANK Flucytosine
disease MESH morbidity
disease VO effective
drug DRUGBANK Trestolone
disease IDO pathogen
disease MESH opportunistic infections
disease VO storage
disease VO protocol
disease MESH Invasive Pulmonary Aspergillosis
drug DRUGBANK Riboprine
disease MESH Aspergillosis
disease IDO algorithm
disease IDO host
disease IDO infection
disease VO organization
disease VO efficient
disease IDO entity
disease IDO commensal
disease MESH immunocompromised patients
drug DRUGBANK Pentaerythritol tetranitrate
disease MESH candidemia
disease IDO susceptibility
drug DRUGBANK Aspartame
disease MESH anomalies
drug DRUGBANK Spinosad
disease MESH emergency
disease VO volume
drug DRUGBANK Guanosine
disease MESH Infectious Diseases

Original Article

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