Touching Technology-Parents’ Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study.

Touching Technology-Parents’ Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study.

Publication date: Oct 22, 2024

Remote consultations (RCs) using videoconferencing was recommended by the General Medical Council as the method for clinicians to provide patient consultations during the COVID-19 pandemic. Facilitating this while providing high-quality care depends on the usability and acceptability of the technology. This project aimed to investigate parents’ experiences of using videoconferencing technology for real-time RCs with children who had congenital heart defects during the COVID-19 pandemic lockdown. This study’s design was quasi-experimental and was underpinned by the Unified Theory of Acceptance and Use of Technology model that seeks to explain and predict an individual’s intention to use a technology. Parents were informed of this study by the medical team, posters were made available in the wards and clinics, and leaflets were left for browsing. Clinician screening of potential participants led to the identification of 33 children and parents who were enrolled on this study. The intervention was a web-based RC by medical staff using a secure, interactive videoconferencing platform (Pexip). Each child and their mother or father received 8 RCs with the same specialist doctor or nurse. Measurements were taken using web-based questionnaires pre and post consultation at the first, middle, and last events; questions were focused on the acceptability, usability, and clinical applicability of RCs. Parents’ experiences were explored using recorded interviews and analyzed thematically. In total, 29 children aged 4-1052 (mean 95, SD 191. 14) days completed the project, receiving a total of 189 RCs as part of their routine care. Parents’ prior experience of consultation via videoconference was low; however, as time progressed, their use and acceptance of the technology increased. The intervention was warmly received by all parents who found the face-to-face component particularly useful for discussion with their child’s medical team. Furthermore, parents noted the savings on time, money, and childcare. While in-person consultations are considered the gold standard of patient care, increasing pressures on health services and staff reduce availability. Given the ease of access and additional benefits experienced by parents and their children, it is proposed that hybrid models of consultation and care provision are equal, if not superior, to in-person consultations in the management of children with severe congenital heart defects while reducing costs and pressure on the health service and parents.

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Concepts Keywords
Cardiac congenital heart disease
Father digital health
Nurse digital intervention
Pandemic digital technology
Videoconferencing parent
pediatric
pediatric cardiologist
pediatric cardiology
remote consultation
remote patient monitoring
technology acceptance
telehealth
telemedicine
telephone consultation
video consultation
videoconferencing consultations
virtual care
virtual health
virtual medicine

Semantics

Type Source Name
disease MESH COVID-19 pandemic
disease IDO quality
disease MESH congenital heart defects
disease IDO intervention
drug DRUGBANK Etoperidone
drug DRUGBANK Gold
drug DRUGBANK Aspartame
disease MESH anxiety
disease MESH infection
disease MESH privacy
drug DRUGBANK Ranitidine
disease MESH Depression
drug DRUGBANK Oxygen
drug DRUGBANK Sodium lauryl sulfate
disease MESH syndrome
disease MESH Atrioventricular septal defect
disease MESH Ventricular septal defect
disease MESH Complex single ventricle
disease MESH Cardiomyopathy
drug DRUGBANK Methyltestosterone
drug DRUGBANK Methylergometrine
disease MESH uncertainty
drug DRUGBANK Activated charcoal
disease MESH home environment
drug DRUGBANK Spinosad
disease IDO process
drug DRUGBANK Isosorbide dinitrate
disease MESH emergency
disease MESH complications
disease MESH heart failure
disease MESH cleft lip
disease MESH cleft palate
disease MESH spina bifida
disease MESH psychological distress
drug DRUGBANK Huperzine B
drug DRUGBANK Coenzyme M
pathway REACTOME Reproduction

Original Article

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