Reconciling data actionability and accountability in global health research: The case of SARS-CoV-2.

Publication date: Dec 01, 2025

The requirements for actionability and accountability in data infrastructures are often viewed as incompatible, creating a trade-off where enhancing one diminishes the other. Through a comparative analysis of two data infrastructures used to share genomic data about the SARS-CoV-2 virus, we argue that making data actionable for knowledge development involves a commitment to ensuring that the data in question are representative of the phenomena being studied and accountable to data subjects and users. This in turn presupposes that: (1) enough data are contributed by a wide and diverse set of relevant sources; (2) mechanisms of feedback and inclusion are set up to ensure that data contributors can participate in data governance and interpretation, thereby helping to adequately contextualise data; and (3) accountability extends to the ways in which data infrastructures are run, financed and positioned vis-cE0-vis the communities they are meant to serve. Such a model of data sharing can only work on the understanding that data do not need to be easily accessible to be actionable; rather, actionability depends on the responsiveness and accountability of data infrastructures, and the efforts invested in ensuring open communication among contributors.

Concepts Keywords
Genomic Biomedical Research
Global COVID-19
Governance Data infrastructures
Reconciling Global Health
Virus Humans
Information Dissemination
pandemic data science
SARS-CoV-2
SARS-CoV-2
Social Responsibility

Semantics

Type Source Name
disease MESH COVID-19

Original Article

(Visited 1 times, 1 visits today)