Burden level and quality of life of caregivers of hemodialysis patient’s in central India: a mixed-method cross-sectional study.

ingentiumby ingentium

In Clinical Literature.

Publication date: Jul 15, 2025

Caregivers of hemodialysis patients are at high risk of developing reduced quality of life (QoL) and increased caregiver burden. This study aims to explore the level of caregiver burden and quality of life in caregivers of hemodialysis patients in central India. This cross-sectional mixed-method study was undertaken among caregivers of stable hemodialysis patients attending a tertiary care hospital in central India. The Zarit Burden Interview (ZBI) and WHOQoL BREF questionnaire measured caregiver burden and QoL. The qualitative data was gathered through in-depth interviews using a semi-structured open-ended questionnaire that delved into their personal experiences with caregiving. The transcripts of these interviews were analysed using applied thematic analysis, allowing for the identification and exploration of recurring themes and patterns within the data. A total of 105 caregivers took part in this study, with a mean age of 40. 04 +/- 12. 96 years. 56 (53. 3%) caregivers were female. Most (48. 6%, n = 51) were spouses/partners. Ten caregivers (9. 5%) had to change their occupations due to caregiving responsibilities. 14 (23. 33%) had comorbidities (diabetes, hypertension, asthma, and arthritis) themselves. The mean caregiver burden level (ZBI) was 18. 55 +/- 7. 58. Most (59. 0%) experienced mild to moderate burden, while 28. 6% reported a high burden. The WHOQoL BREF mean score of various domains of physical health, psychological, social relationship and environmental was 35. 70 +/- 12. 14, 44. 20 +/- 13. 28, 44. 28 +/- 15. 10 and 40. 07 +/- 13. 36 respectively. The thematic analysis revealed, difficulty in continuing education and employment, changing jobs, the need to travel long distances to reach dialysis facilities and hardship due to COVID-19 pandemic as recurring challenges among caregivers. Caregivers of Hemodialysis patients had significant caregiver burden and poor QoL. Regular assessment and special attention are needed for these caregivers.

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Concepts Keywords
Arthritis Caregiver burden
Caregiving Hemodialysis
Hemodialysis WHOQoL BREF
Therapy Zarit burden interview

Semantics

Type Source Name
disease IDO quality
disease MESH caregiver burden
drug DRUGBANK Pentaerythritol tetranitrate
disease MESH hypertension
disease MESH asthma
pathway KEGG Asthma
disease MESH arthritis
disease MESH COVID-19 pandemic
pathway REACTOME Reproduction
disease MESH morbidities
disease MESH ESRD
disease MESH chronic kidney disease
drug DRUGBANK Coenzyme M
drug DRUGBANK Stavudine
disease MESH death
disease MESH heart diseases
disease MESH stroke
disease MESH cancer
disease MESH AIDS
disease MESH liver diseases
disease MESH psychiatric disorders
disease MESH marital status
disease MESH education level
drug DRUGBANK Indoleacetic acid
disease IDO process
disease MESH psychological well being
drug DRUGBANK Trestolone
disease MESH depression
disease IDO facility
drug DRUGBANK Tretamine
disease MESH infections
drug DRUGBANK Fenamole
disease MESH comorbidity
disease IDO infection
disease MESH burnout
disease IDO intervention
disease MESH social stigma
disease IDO immunodeficiency
disease MESH kidney Disease
drug DRUGBANK Hexachlorophene
disease MESH dementia
disease MESH thalassemia

Original Article

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