Publication date: Jul 22, 2025
Caring for someone with Lewy Body Dementia (LBD) is mentally and physically taxing. The Activity Theory of Aging associates reduced activity levels with lower life satisfaction in older adults. With the onset of the coronavirus-19 pandemic (COVID-19), and less activity for many older adults, LBD caregiving burden may have increased along with decreased life satisfaction. To determine the unique experiences, perceptions, attitudes, and beliefs of LBD caregivers regarding activity and its relationship to life satisfaction in the early months of COVID-19. A Focus Group of five LBD Caregivers and one Care Recipient was held over Zoom in October 2020. Participant responses were analyzed using NVivo 12 software, using the framework of the Activity Theory of Aging to guide analysis. Main themes revealed the poignance of experiences of navigating COVID-19 while caregiving, caregiver concerns, and the care recipient concerns. Subthemes highlight social isolation and reduced activity, motor/cognitive/emotional decline, and related coping strategies to improve life satisfaction. Caregiving experiences were impacted by activity level, reflecting the Activity Theory of Aging. Future studies with larger samples on the extended COVID-19 impact for LBD caregivers are needed.
Open Access PDF
| Concepts | Keywords |
|---|---|
| Caregiving | caregiving |
| Coronavirus | COVID-19 |
| Covid | LBD |
| Dementia | socialization |
| Future |
Semantics
| Type | Source | Name |
|---|---|---|
| disease | MESH | COVID-19 |
| disease | MESH | Lewy Body Dementia |